Wow, years since the last posting

I hope that no one has been discouraged from following the link to our most current incarnation because this blog seems to be abandoned.

Nothing could be further from the truth, which is that I sort of forget to update these peripheral places. Apologies, and all that, but if you have been diagnosed with superior oblique myokymia (SOM), then click on the link and take a look. If you think that we are a good match for you and your twitchy eye, follow the instructions thread for joining and the small cadre of members who hold down the wonky fort will be glad to welcome you and help as much as anyone can help such a rare disorder.

You are not alone, and whilst so many people say that about so many things, it is still true for most of them and it is certainly true for us.

http://superiorobliquemyokymia.yuku.com/

Please
join us
at our
new
home
http://superiorobliquemyokymia.yuku.com/


If you are a current or returning member of SOMPeople, we would love to have you apply to our new site. When doing so, please identify yourself as a current/previous member, supply your valid e-mail address so that we can compare it to the information you have previously given to us, and we will get you started there right away. You should also be able to use your current nickname at our new site.

If you are new applicant to our support group, we would love to have you join us! Please follow the link above to visit our site. Take a look around and see if we might be a good fit for you.

Welcome to SOMPeople® for persons with superior oblique myokymia

According to statistics, it is estimated that approximately
6,000 persons have this disorder, worldwide.

Well, we think that this number must be greatly underestimated. Over the past ten years, we have made contact with more than 150 people who have SOM, or have a family member who does. Since these are people who have computers and know how to use them to find us, we believe that there are many more SOMers 'out there' who are still struggling to find a diagnosis, a little help, some decent information and the support they deserve.

Whether you are newly diagnosed, or have been struggling to cope with your vision problems for a long time, and have just stumbled across this page, then you have found a group of fellow sufferers who are waiting to welcome you and offer understanding.To join with other SOMers, please visit our support group at (Depending on this format, you may have to copy and paste the URL.):

http://superiorobliquemyokymia.yuku.com/